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0:00
Welcome
0:11
to ABA on Tap, where our goal
0:13
is to find the best recipe to brew
0:15
the smoothest, coldest, and best
0:17
tasting ABA around. I'm
0:19
Dan Lowry with Mike Rubio, and join
0:21
us on our journey as we look back into
0:23
the ingredients to form the best concoction
0:26
of ABA on tap.
0:32
In this podcast, we will talk about the history
0:34
of the ABA brew, how much to
0:36
consume to achieve the optimum buzz
0:38
while not getting too drunk,
0:40
and the recommended pairings to bring to the
0:42
table. So without further ado,
0:45
sit back, relax, and
0:47
always analyze responsibly.
0:53
And welcome back to yet another
0:56
installment of ABA OnTap.
0:58
I am your very grateful co-host, Mike Rubio,
1:00
along with Mr. Daniel Lowry. Mr. Dan,
1:03
good to see you, sir.
1:04
Great to see you as well. How are you doing?
1:06
Feeling good, feeling good. Recovering, a
1:08
little bit of illness. I think it's going around. We'll
1:11
talk maybe with our guest about that
1:13
as well. But things are going well.
1:15
How are you doing, sir?
1:16
Doing great. Really excited for this
1:18
podcast. This has been a long time coming.
1:20
We've We met this young lady
1:22
a few months ago and I've been
1:24
eager to get her on the podcast and
1:26
today is the day.
1:27
Yep. So we are very
1:29
proud to have
1:32
Maggie Haraberta as our guest today.
1:34
She is the
1:36
founder, director of Unfurling
1:38
Littles, a program that I
1:40
know a lot about with very
1:42
little exposure and I'm very excited to have our
1:44
listeners learn more about. One
1:47
of the things, so we got a chance to meet Maggie
1:49
at the CPABA conference back
1:52
in October of 2024 and
1:54
quite frankly it was my first experience
1:57
meeting an autistic
1:59
BCBA so it was
2:01
a real pleasure to have Maggie be
2:03
that first along with Michelle Zeman who
2:05
but we met both of you during that conference
2:07
and just a very very unique
2:09
perspective so without further
2:12
ado Maggie thank you for your time
2:14
we appreciate you taking time on
2:16
a Sunday which is when we record to
2:18
hang out with us we'd like to start with
2:20
the origin story so tell us all about you. Please
2:22
kick right in.
2:24
Sure. Thanks so much for having me, guys. I'm excited
2:26
for this conversation. So yeah,
2:29
I'm Maggie. I am the founder
2:31
and clinical director of Enferling Littles.
2:33
And I got into this
2:35
field the field of ABA
2:38
because I wanted to disrupt
2:40
what was happening and help to shift
2:42
the field to be more neurodiversity
2:44
firming, more accepting,
2:46
and a little bit more compassionate.
2:49
So to back up a little bit, I
2:51
did talk till I was in three. I was in
2:53
conventional speech therapy. I
2:55
had a lot of what felt like
2:57
just othering myself. Like I felt like I never
2:59
really fit in, never really understood
3:01
the way that other people worked. I was
3:03
diagnosed with anxiety
3:05
as a kid. And
3:08
I just, yeah, had that constant
3:10
feeling of like, I just don't quite get it. Like
3:12
everyone felt like they were going one way and I was
3:14
going in the other direction and
3:16
that stuck throughout my childhood.
3:18
And I think that feeling
3:20
really started to be internalized
3:22
the older I got. So when I was 12
3:25
years old, I developed an eating disorder.
3:27
And then by 16, I was a full blown alcoholic,
3:30
experienced many
3:32
instances of being in dangerous
3:34
situations and failed to pick up on
3:36
those like social cues that I was unsafe.
3:38
And so
3:41
While I was going through that, I felt like
3:43
it was the only way that I could regulate
3:45
myself. I was constantly feeling
3:47
dysregulated and didn't know how else
3:49
to calm what I was experiencing
3:51
besides drinking. And
3:53
when I was 22, I
3:55
finally got sober. So I got sober very young,
3:57
and I've been sober since then. I just turned 30 this
4:00
year. Shout
4:00
out to
4:00
you for that.
4:01
Congratulations. That's a lot of work.
4:03
Thank you. That's a lot
4:04
of work.
4:04
Thank you. Yeah,
4:07
during that time, though, I was I went to school in the
4:09
University of Vermont, and
4:11
I was studying to be an early
4:13
childhood special educator. And I
4:15
was working as a personal care assistant for
4:17
a six year old child who was not speaking.
4:20
And I felt safer with him than
4:22
I had ever felt with anyone in my entire
4:24
life. And, you know, he wasn't
4:26
speaking at the time. But when I was with him, I just
4:28
felt that safety and security that I
4:30
had long sought through the relationships
4:33
in my life. And
4:35
when I moved back to Philadelphia in,
4:37
let's see, what was that? 2018.
4:41
I started working in early intervention
4:43
and went on to get my
4:45
master's in EPA. And
4:48
really, the only reason I went through with working
4:50
in this field is because of acceptance and
4:52
commitment therapy or ACT. That's really what drew
4:54
me to it. And I thought, well, you know, if this
4:56
is a part of the field, then maybe I can
4:58
pallet this and help to make shift.
5:00
And then I found Project Impact, which
5:02
is a naturalistic developmental
5:04
behavior intervention and TBI.
5:07
And yeah, I joined the field
5:09
and I, pretty quickly
5:11
started working with the middle school
5:13
population and was doing primarily
5:15
ACT. And I was working with
5:17
a middle school girl who
5:20
said to me, are you
5:22
autistic? She said, you're just like me. Everything you
5:24
describe, everything you talk
5:26
about, I relate so much to you.
5:28
Like, are you on the spectrum too? And I said, you know,
5:30
I haven't really thought about it, but
5:33
maybe. And that kind of planted
5:35
the seed to start to explore my
5:37
own neurodiversity. And then
5:39
I went on to move in with my now husband
5:41
who picked up on things I did
5:43
that I didn't know wasn't necessarily
5:46
typical. And so he
5:48
really encouraged me to
5:50
seek an evaluation as well. And
5:52
I worked with this amazing psychologist
5:54
here in Philly, Dr. Robert Nassif,
5:57
and I shared my story with
5:59
him, like I just shared with you guys. And
6:01
he said to me that I just described the
6:03
female autistic experience,
6:05
these instances of eating disorder, alcoholism,
6:08
assault, like it's so common
6:11
in people. autistic females. And
6:13
that was a couple years ago. And it's been
6:16
really, really wonderful to understand
6:18
the way that my brain works and operates.
6:20
And when I got my diagnosis,
6:22
it was like my mom got hers as well.
6:25
So she's also on the spectrum.
6:28
Yeah, friends and the family, apparently. Two
6:30
for one. Yeah, yeah,
6:32
two for one. Friends and the family. I've heard
6:34
that. I've heard that.
6:36
Yeah.
6:37
That whole genetics thing, right?
6:39
Yeah. Yeah, exactly. Yeah.
6:41
So yeah, that's a little bit about
6:43
my story and how
6:45
I got here. A
6:46
huge relief for you in that sense.
6:48
I'll put that in contrast
6:50
to a lot of early intervention experiences
6:52
that I might have professionally where this
6:55
is a huge concern,
6:57
unexpected life
7:01
event for some people. For you, I mean, so
7:04
for parents, it can be devastating and rightfully
7:06
so, we can understand why. You, in
7:08
contrast, it was a
7:10
relief. to find out.
7:13
Is that fair to say? And I think
7:15
absolutely. I mean, huge relief. And when I do
7:18
a lot of free speaks on
7:20
neurodiversity affirming care, and one of
7:22
the biggest things I say is if you
7:24
think your child has another neurotype, like please
7:26
seek an evaluation to spare them
7:28
what I went through. I think if I had
7:30
known that I operated in a
7:32
different capacity and it's not
7:34
bad, it's just different. I don't think
7:36
I would have had to go through what I
7:38
went through to get where I am today.
7:41
Interesting, because it's
7:43
always, you know, as somebody who's
7:45
not on the spectrum, or at least not diagnosed
7:48
on the spectrum, it has been something
7:50
that's been difficult to broach, I
7:52
think, with a lot of families. So I guess my question
7:54
to you, Maggie, is can you expand on that? Because
7:56
the day before your diagnosis,
7:59
you had, I'm sure you had the same
8:01
Personality type is the day after. So the diagnosis
8:04
doesn't change anything about
8:06
you, but what, what did it, did it allow
8:08
you to like compartmentalize or explain
8:11
or make sense of things? And if so, what things
8:13
like without getting, you don't have to be specific
8:15
about the behaviors, but like, how did,
8:18
how did it help?
8:20
Because it's just a label, right? Somebody gave to you.
8:24
Yeah, I mean, even thinking back to some of my earliest
8:26
memories, like I remember having this,
8:29
this girl come over for a play date. And I was probably
8:31
in first grade. And I
8:33
think it was one of my first play dates. And I knew that
8:35
she liked science, like she liked bugs and
8:37
insects. And so I thought, well,
8:39
I like bugs and insects, then that
8:41
means that we can be friends. So I went
8:43
and I got all these books about bugs and insects,
8:46
and I played them all around the floor.
8:48
So and pretended to read them when she came
8:50
over. Because I thought if we had this,
8:52
this connection, then then that means we
8:54
that were friends so I
8:56
think back to that like if I had understood like
8:58
I you know how friendship worked like
9:00
some of those like some simple things that
9:02
people who are neurotypical might take for
9:04
granted that's just information they have
9:07
like there were so many times where if I
9:09
had had more information I don't think
9:11
I would have suffered like another
9:13
example is every day at lunch in
9:15
elementary school I would spill my milk I just have
9:17
no proprio receptive awareness okay and
9:19
I'm talking and my hands are flying
9:21
all over the place I'm crashing things over and
9:23
every day I spill my milk and my friends would get
9:25
so upset get up leave the table and
9:28
I didn't know why or like what I was doing
9:30
wrong but if I had the wherewithal
9:32
back then to say oh I'm I just have no
9:34
body awareness. You know,
9:36
I can bring humor to it. I can bring some diffusion
9:39
and I can also bring some acceptance for
9:41
my friends that I'm not doing this intentionally.
9:43
I literally don't know where my body is
9:45
in space at any given moment.
9:47
Well, that's fascinating. I mean, just the
9:49
affirmation, the idea that this is
9:52
why this happens and now we don't
9:54
have to wonder about it or, I mean,
9:56
people can still be disparaging
9:58
about it, but at least now they're
10:00
making a choice to do so as
10:02
opposed to being curious just like you what's going
10:04
on here? Yeah. That's so fascinating. It's,
10:06
it's this, I'm not doing this on purpose. I'm not
10:08
trying to, you know, in fact, I'm, I'm excited
10:10
to talk to you. So my hands are moving. I, I
10:12
gesticulate too. So I get that. I get that
10:14
for sure.
10:15
I have one more question with that. Did it
10:17
help you understand
10:19
your behaviors better or did it help you understand
10:21
other people's behaviors better? Cause there's
10:24
a difference, right? And between your behaviors
10:26
and other people's behaviors in those regards
10:28
of like what a friendship would be.
10:30
So what, which, Did
10:33
it lead you to more internalize of, okay,
10:35
I feel like I
10:37
need to now, not need to,
10:39
but I feel like it would benefit me
10:42
to explore
10:44
maybe the way that they're doing things differently, or did
10:46
it help you now be able to
10:48
explain to other people so that they can
10:50
accommodate for maybe your thought processes
10:52
and perspectives?
10:55
I think that it helped me more than anything
10:57
understand myself and then also
10:59
understand why people responded
11:02
to me the way they did. Like
11:04
in middle school, for example, I was voted most
11:06
interesting, which really just means weirdest.
11:09
And I understand that now
11:11
it's because like at that
11:13
point, my masking wasn't as severe
11:15
as it became in high
11:17
school. And so I think
11:19
the biggest thing I would have gained
11:21
with an earlier diagnosis is
11:23
I more resources
11:26
to regulate myself. I
11:28
have this huge stack of demerits
11:30
that I would get for chewing gum, but I was
11:32
oral sensory seeking. And so the
11:34
gum was an accommodation
11:37
that I had given myself, but was
11:39
punished by the people around me.
11:41
So if they'd known, oh, she is autistic
11:43
and she might have difficulties with sensory
11:45
processing, maybe this could be an accommodation
11:47
we could put in place for something
11:49
that we would need to punish her for.
11:51
Even thinking about
11:54
autism my old report cards you know
11:56
she's constantly moving or she's
11:58
got to sit still she needs to focus like
12:00
those would have been great opportunities
12:02
for me to have an accommodation like
12:04
maybe i have a wiggle seat or a fidget
12:06
something that can i can use instead
12:09
of just telling myself stop moving stay
12:11
still stay still stay still like stop
12:13
being who you are
12:14
that makes sense so it like
12:16
becomes less personalized of
12:18
why do I feel this way
12:20
and why is somebody not connecting with me?
12:22
And then you get the explanation and now it allows
12:25
you that ability to understand why
12:27
that might be the case.
12:30
Yeah, exactly.
12:31
Will you expand on masking a little bit?
12:33
Because that's an interesting
12:35
concept. The way you speak about
12:38
it, it's in terms of
12:40
your own volition or choice to...
12:42
mask certain things
12:44
you do in certain settings, that
12:46
sounds okay. Now the idea that
12:49
ABA traditionally may have encroached
12:51
or forced masking upon
12:53
certain individuals, that's a really important difference.
12:56
So it's not masking yes or no,
12:58
it's masking, if this is fair to say,
13:00
based on the individual's decision
13:02
to do so. And then, and sometimes
13:05
it's going to be based on the greater
13:07
you know willingness to just
13:09
go with the flow and okay so somebody's
13:11
making movements that are a little bit
13:13
unorthodox to use that term
13:16
what's the matter why are we
13:18
so caught up in it so even diagnostically
13:20
the idea that initially you know I'm saying be who
13:22
you are I think there was a
13:24
you know with all due respect a traditional notion that
13:26
stereotypy for example we can
13:28
make that go away behaviorally and
13:31
what we're talking about here is completely different this is
13:33
masking based on the individual's
13:35
volition what's your thought on that
13:38
I think it's really complex.
13:40
And for me, I
13:43
always think about what is the message
13:45
that I'm sending during my interactions.
13:47
I talk a lot about
13:50
microaggressions with the teachers that I
13:52
work with. So
13:54
saying things like, wow, you're really
13:56
making a lot of eye contact today, or you're
13:58
really staying still at circle time. And
14:00
those things can be seen as reinforcing
14:02
reinforcement. But what it's really reinforcing
14:05
is the child's ability to mask
14:07
their needs. And so instead,
14:09
I have, I'll coach them to use
14:11
acceptance phrases, such as like,
14:13
I see you, I hear you, What
14:15
can I provide to you? What do you need? And
14:18
so helping them see it's okay if you need to fidget,
14:20
wiggle, and move. I'm not going to send the message
14:22
that that's bad because that's
14:24
innately what your body is telling you that you need
14:27
to be doing. So I think
14:29
it's the idea of masking
14:31
for me is that I'm transitioning into
14:33
this phase of unmasking and
14:35
seeking to ask
14:38
for the accommodations that I didn't have
14:41
growing up. And
14:43
There's times at which I might
14:45
choose to mask, whether it's
14:47
for my safety, for my well-being,
14:49
for the way I'm perceived professionally.
14:51
So I think the important
14:53
piece about masking is that it is up
14:55
to the individual. And so as
14:57
a company, we have a policy that we
14:59
will not encourage or reinforce masking
15:01
of any kind. That being
15:03
said, if I'm working with a middle schooler
15:06
who says, I want to learn
15:08
how to do X, Y, and Z,
15:10
I always talk to them that engaging
15:12
in those behaviors isn't innately
15:14
bad. And masking
15:17
who you are at your core can
15:19
lead to negative mental health
15:21
outcomes. So I think when we're working with
15:24
older children, I'm always making sure that they're
15:26
aware of if you do choose to mask,
15:28
that is your choice. But I need you to
15:30
make sure that you also have spaces in which you can
15:32
unmask to fully be yourself.
15:35
Excellent. I've got to process that microaggressions
15:38
piece. That was really interesting. I've
15:41
got to let that process because I've
15:43
never heard it explained like that.
15:45
Let's
15:48
say somebody's at circle time
15:50
or doing work or something like that.
15:53
Some of the maybe traditional microaggressions
15:55
you would hear people do.
15:57
I think you said nice job
15:59
sitting still. or
16:01
things of that nature, the eye contact makes a
16:03
lot of sense. Can you
16:05
think of some other traditional ones? Because I gotta
16:07
try to implement this into my practice
16:09
and make sure that I'm not inadvertently doing that.
16:11
And thank you for making me aware.
16:13
Yeah, I
16:15
think it's like the calm body. I hear a
16:17
lot, thank you for having a calm body. Thank
16:19
you for showing me that you're ready to learn. I
16:22
don't think people are malintentions when they're
16:24
saying those things, but what it's really conveying
16:26
is I like you better when you have
16:28
a calm body. I
16:31
prefer you when you're engaging in
16:33
this type of behavior instead of that one.
16:35
And so I think it's really important
16:38
that we're thinking about those things
16:40
as minute as they may feel. I'm
16:43
always thinking about what,
16:45
how am I making this child feel and what I'm
16:47
saying and what message am I sending to them?
16:49
The way you put
16:51
it was interesting, right? Hey, I can see you. I can
16:53
hear you. Does that mean
16:55
in your opinion, the teacher can then
16:58
ask about that can you see me or can you hear
17:00
me right now is that okay
17:02
would you feel and that's
17:04
the whole point i think what teacher is trying to say in that moment
17:06
is is i think
17:09
the good intent is if you have a calm
17:11
body then i if you're looking
17:13
at me with a calm body and you're active listening
17:15
or whatever phrasing people might use
17:18
the idea is that i feel like
17:20
you have the best chance of listening
17:22
to me right now. And that may not
17:24
be the case for any given individual. That's just
17:26
our perception that,
17:28
you know, yes, the idea that I can look at
17:30
somebody, you know, dead in the face and
17:32
they think I'm actively listening, but my mind might
17:34
still be drifting. We just have this assumption that
17:36
that's the way active listening looks.
17:39
And what you're saying is, no,
17:41
no, that could be very different. It's the idea that
17:43
maybe your affirming language is, hey,
17:45
I'm trying to make a connection with you somehow. So if I can
17:47
see you and hear you and you can see
17:49
me and hear me, then we're good. Is that
17:51
fair to say?
17:54
Well, I think it's that we have this
17:56
idea of what engagement looks like. Y es,
17:58
we do. That it looks like someone orienting
18:00
and focused. Staring at you right in the face,
18:02
right?
18:04
Exactly. But if I'm doing that,
18:06
you can notice when I'm talking, I'm not looking
18:08
right at you guys. I'm talking and I'm
18:10
looking around because if I'm focused
18:12
on looking right at you, I am
18:15
most likely dissociating and
18:17
not focusing on anything else except
18:19
for where my eyes are in space. So
18:21
when I'm in session with autistic
18:23
children, typically we're
18:25
moving all around the room. We're not looking at
18:27
each other, but we're having extremely active
18:29
conversation. That's really dynamic
18:32
because we're giving our bodies what they
18:34
need in order to stay regulated so
18:36
we can access the conversation
18:38
and the engagement.
18:40
Yeah. So I think it's,
18:42
like I'll usually redefine for the kids I'm
18:44
supporting of what does engagement look like for
18:46
them? Cause it's gonna look different
18:48
for every kid. Like for
18:50
a child at circle time,
18:53
like something the teacher might do to
18:55
show acceptance is if they
18:57
do need to wiggle and move in
18:59
order to access circle time, maybe they give them
19:01
a special space that they can sit in so they
19:03
won't bump into other people, but they can still get their
19:05
needs met. Maybe they have,
19:07
if they see the child is fidgeting
19:10
with their hands or looks uncomfortable, maybe they
19:12
hands them a fidget and just said, I see you.
19:14
This is here if you need it, right?
19:16
Is that sending the message? It's okay
19:18
if you need to do this. It's not
19:20
bad. And it's accepted from me
19:22
in this space. Thanks.
19:24
I remember I was in college and
19:26
there was a professor that kind of subliminally
19:29
did a test on us. He
19:31
was presenting one day and he said, I want you
19:33
all to count how many times they say, uh,
19:35
as I deliver this message in the next.
19:37
And then people counted it. And then he's like, what
19:39
did I talk about? Nobody knew what he talked
19:41
about because it was like your brain could only focus on
19:43
one of the things. And it kind of seems like that's
19:46
what you're saying. If your brain is solely focused on
19:48
eye contact, calm body, you might
19:50
lose the total message because you're spending all
19:52
of your brain space focusing on that.
19:54
Yeah. Is that accurate?
19:57
Yeah, I think, yeah, absolutely. Like
20:00
I know for myself, sometimes at the
20:02
end of the day, I might just be
20:04
spent from like verbally communicating.
20:06
And so my husband and I might sit quietly.
20:08
We might not have back and forth conversation. Maybe
20:11
I'll even message him some thoughts that I'm thinking
20:13
while we're sitting on the couch instead of verbally
20:15
communicating. And there's always,
20:17
if I'm having a deeper challenging conversation,
20:19
I'm rarely making eye contact in
20:21
those moments because I need to stay focused
20:23
on the topic of what we're discussing.
20:27
I
20:28
was just going to say this is fascinating. I mean,
20:30
what you described with your husband, for example,
20:32
that's an amazing relationship
20:34
practice that maybe people aren't aware
20:36
enough about themselves to shut
20:38
up
20:41
once in a while. Right? So you guys are like, hey, I mean,
20:43
you know, your excuse, so to
20:45
speak, is, hey, look, I'm autistic. I need to do this.
20:47
I think a lot of people maybe are missing
20:49
the fact that you need to shut down sometimes and
20:51
we just need to sit together and do nothing.
20:53
Because if we speak right now, I'm exhausted,
20:56
you're agitated, that might lead to. I
20:58
was just really fascinated by you describing that. I
21:00
think it's greater self-awareness
21:03
where we might look at it
21:05
from a diagnostic perspective as a lesser self-awareness
21:08
in some points if we're not careful
21:10
enough about our thought process. Anyway, thanks
21:12
for sharing that. That was fascinating.
21:13
Yeah, that's what I was basically going to say.
21:15
We both went to the relationship.
21:18
You have just an extremely high level of
21:20
self-awareness and a great way to articulate
21:22
that, which I think bodes well
21:24
in just society in general,
21:26
right? Because maybe a lot of people aren't able
21:28
to understand or
21:30
communicate on the level that a lot of the
21:32
maybe individuals that are non-speaking
21:35
communicate at. So
21:37
again, I don't know much about
21:40
your husband. The fact that you're
21:42
able to say potentially,
21:44
husband, this is what I need from you. This is what I would appreciate
21:46
verbally. He probably understands
21:48
that and then can accommodate for that.
21:51
And then your level of awareness as well.
21:53
Now, for a lot
21:55
of people who might not have either that level
21:57
of awareness, but it's hard to say what people have or don't
22:00
have. It's easier to know what they can articulate
22:02
back to you. Do you have any
22:04
thoughts on that for
22:06
individuals that may not have the verbal ability
22:08
you have to articulate that back?
22:13
Yeah, I think it's about
22:15
just really getting back. curious about what
22:17
goes on internally.
22:19
Like I know for us, after
22:22
an activity at the center or during
22:24
a session, I might say something like, I
22:26
wonder how that made you feel. And
22:28
I'm doing that to just draw their awareness
22:30
to check in. I'm like, huh, how did I feel after
22:32
X, Y, and Z happened? And
22:35
so I think that for children who are non-speaking,
22:37
it's the same thing. Like we do a lot
22:39
of not labeling emotions.
22:41
I don't believe in just blankly labeling someone's emotions,
22:44
but we'll draw their awareness to their
22:46
physical What does
22:49
that mean?
22:51
Like pulling back, pulling,
22:53
like pulling back and saying
22:55
that if there was like withdrawing their hands
22:57
or whatever it may be, but trying to
22:59
help them make the connection of like
23:01
when X stimuli was there,
23:03
my body responded in this way.
23:06
And I think that's really how you make that behavior
23:08
change over time. That's meaningful
23:10
for that person. And like, it took
23:12
me time to have that self-awareness,
23:14
you know, at times I might not know. And then
23:16
I might get short or snappy with my husband
23:19
versus if I can say, Oh, I'm, I'm a
23:21
little dysregulated right now. I think I need to take some
23:23
time for myself. And we
23:25
have this rule in our house that just because
23:27
we're in the same room doesn't mean we're hanging out.
23:29
And so we try to
23:32
make sure if we are engaging, like checking in before, like,
23:34
do we have the capacity to do this? Or do we have the capacity to do this? We
23:36
just need to take some quiet
23:38
for
23:38
ourselves. Well, dysregulation happens.
23:40
I mean, we all get dysregulated all
23:42
the time. That's what I was saying. We're
23:45
not so aware of it or so
23:47
apt to say it, right? So
23:49
otherwise, we give each other the cold shoulder
23:52
or the silent treatment or whatever it is. That means
23:54
some level of dysregulation and not
23:56
necessarily being aware of it. That's why I'm so fascinated
23:58
by that premise. I mean, it's fantastic.
24:01
That is amazing. My last
24:03
question with the masking piece.
24:06
So that
24:08
sounds, and we are so on board
24:10
with what you're saying. You've
24:12
been so integral to us starting our
24:14
own company and things like that. I'm sure we'll talk so much
24:16
about that as we go through this podcast because
24:18
we are on, I believe, the same
24:20
exact wavelength with how the services could best
24:22
be delivered. So you
24:24
have a teacher in this situation, and
24:26
you were talking about this in pertaining
24:28
to masking. Maybe the child
24:30
is running around, rambunctious, things like
24:32
that. And maybe that teacher
24:34
in that situation can be
24:36
accommodating and allow for that.
24:40
The way that, obviously, typical
24:42
education is set up, and we
24:44
can talk about that probably isn't the
24:46
best way that it should be, but it is for
24:48
the most part is sitting down
24:50
at a chair and eye contact and
24:52
things like that. So do you find a
24:54
difficulty in taking
24:57
in a teaching structure which
24:59
is so much more individualized and child-focused
25:01
and focused on that one person.
25:03
And then at some point helping
25:05
that individual transition to
25:07
a more, what could be called structured
25:10
or traditional education setting. Is that
25:12
something you advocate for? And if so,
25:14
do you have any difficulty with that transition?
25:16
Hopefully that made sense.
25:18
So it does.
25:20
I think a lot of the work that I do is
25:22
harm reduction. I can't change
25:24
every space in which a child will
25:26
enter, but I can change the
25:29
spaces that I can control.
25:31
And so when children are entering into those
25:33
more typical settings and structures,
25:35
I always make sure
25:37
that A, they're not the only
25:39
neurodivergent person in that room,
25:42
and B, that if they're going to be in that
25:44
setting, they have the ability
25:46
to advocate for the accommodations that they
25:48
need. And so I think when
25:50
we're thinking about things like accommodations,
25:53
it is up to the individual
25:55
to self-advocate for what they need.
25:57
But until they're able to do that, then
25:59
it's our job as therapists,
26:02
behavior analysts, technicians, whoever it may
26:04
be, parents, to advocate
26:06
for those needs so that they're able to access
26:08
that environment. I think a
26:10
lot about, are you guys familiar with
26:12
universal design for learning? No.
26:15
No.
26:16
Okay, so Universal Design for Learning
26:18
thinks about the ways that we can make these things
26:21
that are unanimously available for people
26:23
at all times. And so I've been thinking a lot about
26:25
universal design for regulation.
26:28
So having the accommodations in place so
26:30
that someone doesn't need to ask for them,
26:32
meaning, you know, fidgets are great for all
26:34
humans, not just people who are neurodivergent.
26:36
So keep a basket of fidgets readily available
26:38
for everyone. Same with flexible
26:40
seating, have a variety of flexible seating options
26:42
available for all humans.
26:45
So when we're thinking about in the spaces that
26:47
these kids might go into, I think the question
26:49
is, Are they able to differentiate
26:52
how people are going to respond to them?
26:54
So we have a child
26:57
now that we support in a typical
26:59
school environment.
27:01
And when I arrive, the teachers often
27:03
get upset because he will start to
27:05
unmask. He starts to wiggle more.
27:07
He starts to fidget more. And
27:10
so when I go into that space,
27:12
I am encouraging him to take a break
27:14
from masking and to unmask. And
27:16
then I'm trying to educate the teachers on
27:18
that. That's what's happening in this moment. The
27:20
child is not acting out now that I'm here, he
27:22
is feeling safe enough because I'm here
27:24
to unmask. So I
27:26
think that there's a long way to go
27:28
in terms of these environments
27:31
and having teachers like that that are willing
27:33
to work with me. But as
27:35
I said earlier, I do these free trainings in our diversity,
27:37
affirming care. And this year I
27:39
did one in one of the biggest school districts
27:41
around us. And so there is
27:43
change happening in typical education.
27:45
I think it's just a lot
27:47
slower than we
27:49
need it.
27:51
I was going to
27:53
say that makes a lot of sense. Assuming
27:56
the teachers are willing to work
27:58
half the time, it's hard, especially with general
28:00
education teachers, to get them to follow what's
28:02
in an IEP. I can't tell you how many times
28:04
I've heard, yeah, it's in the IEP, but that's not how we do
28:06
things in my classroom. I
28:08
mean, that's unfortunate,
28:11
but that's
28:13
what we run into sometimes. So the more we can
28:16
educate people, I think that's just
28:18
amazing.
28:19
What's... You know, what's
28:21
the trick? I'm sure you
28:23
speak to all sorts of educators,
28:25
and that's a really fine line
28:28
between unmasking
28:30
and fooling around.
28:31
Yeah.
28:32
You know, that's got to be tough
28:34
to discern. You are,
28:37
you know, Mrs.
28:39
Smith. You've been teaching for 30
28:41
years. What can
28:43
Maggie Haraburda teach me? This
28:45
kid's just noncompliant and
28:47
needs to be disciplined. And that's...
28:50
That's a tough line.
28:52
That's hard because we're approaching it
28:54
from a sense of uniformity. You're
28:56
coming in and you're going, no, clearly
28:59
it doesn't work for Johnny
29:01
or whoever. I mean, we can see
29:03
that. And the more you try to force them
29:05
into it, it doesn't mean it's going to get any better. So what
29:07
do you find are your strategies
29:09
to try and educate those
29:12
people who do have a lot of experience
29:14
but are walking that
29:16
fine line between unmasking
29:18
and fooling around?
29:21
So I have a rule
29:23
for myself that I only educate
29:25
those who want to learn and
29:28
further from once are ready
29:30
and have the capacity to learn and change.
29:32
So at
29:34
my company, we screen the schools we
29:36
go into to see where they are in their
29:39
journey of neurodiversity affirming care.
29:41
And we're not afraid to say, no, this is not
29:43
a good setting for us to provide services in.
29:46
And so that's to support...
29:48
My own regulation and
29:51
our staff's, because if we're constantly
29:53
in spaces in which we're fighting, we don't
29:55
get to do the work. That's so meaningful.
29:57
We don't get to actually support these kids.
29:59
And so for me, I go into
30:01
spaces in which people want to listen
30:03
and which people want to change. And,
30:06
you know, I often think.
30:08
um, what side of history do I
30:10
want to be on? Right? Like, do I want to be
30:12
in these environments where I'm not really
30:14
making change or do I want to be in the spaces
30:16
that fully want to accept this,
30:18
this ideological ideology
30:20
and make those changes?
30:23
Um, and so when I think when I started to say
30:25
no in spaces, I
30:28
saw that we were invited more
30:30
frequently into the spaces that were
30:32
ready to say yes to this
30:34
type of interaction style. Um,
30:36
And I think that's what a lot of
30:39
people in our field are really scared of is saying
30:41
no to a family or saying no to a
30:43
school environment and just accepting
30:45
that this might not be a space in which
30:47
I can make meaningful change.
30:49
I also think a lot about micro-shaping
30:51
and we're constantly micro-shaping
30:55
people's behavior to be more affirming. And
30:57
so if we are in a space that's not very
30:59
affirming, what are the small, very
31:01
small changes we can start to make
31:03
in order to help shift things forward?
31:06
But for me, the risk is to high in
31:08
working in spaces that aren't going to be affirming
31:10
when, you know, there was a recent study
31:12
that came out in 2019 that nine out
31:14
of 10 autistic females have been assaulted.
31:16
And if you're autistic
31:19
or neurodivergent, you are two
31:21
to three times more likely to experience trauma.
31:23
So for me, the risk is too high
31:26
in continuing to engage and
31:28
to be a part of those spaces that aren't affirming
31:30
these kids.
31:32
Saying no, that's amazing.
31:34
Like saying no, I'm not going to work in your
31:36
setting. I wish that happened
31:38
more often.
31:40
Well, it takes, I mean, from a fiscal perspective,
31:42
that can be difficult for people. That's the challenge
31:44
is they take anything
31:46
that comes our way because you're looking to, I
31:49
mean, yes, there's a fiscal
31:51
drive and then you're looking to make a change. And then
31:53
to Maggie's point, oftentimes
31:56
those situations, we end up overextended
31:58
and actually not you
32:00
know, making a change and overworking
32:03
staff and, you know, things like that.
32:06
Give us your best and worst. Give us your
32:08
most pleasant
32:11
circumstance in walking into a situation
32:13
and being like, oh, wow, these folks are really
32:15
on their way to something more
32:17
neuroaffirming, more neurodiverse
32:19
affirming, and then maybe a nightmare
32:22
where you walked in somewhere and said, yep, no, I can't
32:24
do this, if that's fair, if you
32:26
can remember.
32:27
Yeah.
32:28
Yeah, I mean, recently, I went to a
32:30
school and did one of
32:32
my free trainings in our diversity improvement care.
32:34
And it's a large school in Philadelphia.
32:37
And then a week later, I got an
32:39
email asking if our company would contract
32:41
with them to provide all of their behavioral
32:43
support. So I think that's one of the times when
32:45
I thought, wow, we're not doing that.
32:47
We want to do more of that. Let's
32:49
see if we can work with them. So
32:51
I feel like when there's situations like that, I always
32:53
think, well, this is a win. They want to learn.
32:55
Maybe they're not where I would like them to
32:58
be today. But if that willingness and readiness
33:00
is there, then that's
33:02
the space that I want to
33:03
be in.
33:06
Worst situation was
33:09
probably a couple of years ago. I was in a school in
33:11
Philly, an approved private school.
33:13
And
33:15
just the strategies that they were using
33:17
were awful. I mean, very, very
33:20
on the line of abusive. And
33:22
I was trying to just make as many as
33:24
possible. little change as I could at that
33:26
time. But
33:29
I didn't do it in a way
33:31
that was slow enough. So I ended up highlighting
33:33
all the parts of the child's IEP that they
33:35
were ignoring and not implementing.
33:37
And I sent it to the principal.
33:40
And I was asked not to come
33:42
back.
33:47
So
33:51
it was a
33:54
good
34:03
experience.
34:10
Do
34:12
you find that that's particularly re-triggering
34:14
or triggering for you,
34:17
just based on maybe your own experiences in the
34:19
past and how you may relate to those people
34:21
that are, you call it being borderline
34:23
abused, or maybe it's not even to that extreme,
34:25
but the people that are not being treated with the respect
34:27
and dignity that you would expect them
34:29
to be treated with?
34:33
Definitely. I mean, you know, most of
34:35
the staff at unfurling littles is also neurodivergent.
34:37
And so I have to be really careful about the spaces
34:39
in which we we go into,
34:41
because even something like,
34:44
you know, working towards potty independence, we're
34:46
in a school now, and the teachers are being
34:48
very intrusive and physically forcing
34:50
the child to go and sit on the potty.
34:52
And we're saying we can't be a part of this. But
34:54
I've had conversations with the staff where
34:56
it's really hard for them to watch that. And
34:59
same for me, if I see
35:01
someone not honor a child's Yeah.
35:33
That's
35:34
a really important point.
35:36
And I think I'm going to try to take sort
35:38
of a simple premise that you just discussed.
35:40
But I think that
35:43
in being client-led or child-directed,
35:45
people often think that there's this
35:47
general permissiveness. They sort of
35:49
go to, oh, let them do whatever they want. What
35:51
you're discussing there and saying a child, hey, so
35:53
we're in a classroom, reasonably so,
35:55
based on logistics. We have a bathroom schedule.
35:57
Now it's time to go to the bathroom.
36:00
Oh, now you're saying no. Okay, that's
36:02
acceptable. However, I
36:04
see you clenching your legs together.
36:06
You're dancing around. I
36:08
think you need to go. Describe
36:10
to us kind of your best
36:12
practice there in terms
36:15
of being a mindful, observant
36:17
adult who can say, hey, I really think you need
36:19
to go to the bathroom, Johnny, but I'm still
36:21
listening to your no. I think that's confusing for
36:23
people in terms of just,
36:25
okay, so Johnny didn't say yes right away.
36:27
That's not the end of the world. And yes, I know that you've
36:29
got 12 other students over here, but
36:32
you're going to have to come back to Johnny and ask him
36:34
again, especially because yes,
36:36
he does wet his pants and you see that he needs to go,
36:38
but he's really engaged in the blocks.
36:40
And right now he doesn't want to. What's, I don't
36:42
know if you can describe your best practice there.
36:46
Yeah, I think it's the piece that's really
36:48
hard for people is the time. They want compliance
36:50
now. Now. Right? And they're
36:52
not willing to wait. And so I think in those
36:54
situations, it is what
36:56
you described. Thank you for telling
36:58
me now. And really then that
37:01
for me is when the detective work starts. Like
37:03
that's as a BCB, that's when our job begins.
37:05
And I think we've been practicing in
37:07
such a lazy way up to now where
37:09
it's like, well, child said no. I forced them
37:11
to go. You do what I say.
37:12
Yeah.
37:14
I made the behavior change. What did you
37:16
do? But the repercussions of that
37:18
are so high. So then I need to figure
37:20
out why did they say no? Why was
37:22
it a no? Do they not have enough preparation
37:24
time? Do they not know where
37:26
we're going? Is it really loud
37:28
in the bathroom? Do we need to find a bathroom
37:31
that's quieter? And really starting to examine
37:33
why the child might have
37:35
said no. And so I think it's so
37:37
hard to even talk about what I would do
37:39
in that situation because I would want to have the background
37:41
and the history of why they might
37:43
be saying no.
37:44
Maybe
37:45
they're saying no just because Just because
37:47
that's their response when someone asks them to do anything.
37:49
So maybe we can diffuse with
37:51
some humor
37:53
in that moment. Like, no, no, no to
37:56
the bathroom. A lot of times
37:58
when I'm working with kids, even just playfully
38:00
responding to their no, of letting
38:02
them know I heard that you said no. Some of
38:04
them, I think, just want to say no to
38:07
move towards that yearning of autonomy.
38:10
And
38:10
so I think that's where the...
38:13
Yeah.
38:15
So that detective
38:21
work
38:23
of like,
38:26
why is it?
38:28
No. And what,
38:30
what can I as a BCPA
38:34
find out by
38:36
doing my job?
38:43
And that can be difficult for people. And in that
38:45
moment, we run the risk of being
38:47
overly authoritarian without
38:49
any need, right? Nobody's going to
38:51
die or get hurt. Okay, so a five-year-old
38:54
wets their pants. Is that completely uncommon?
38:56
No, it isn't. It happens all over the world
38:58
every day. But I like that. Even
39:00
though that distinction between saying
39:02
autonomy versus me saying,
39:04
well, the child just wants to control, which
39:06
means that by saying that, I want to control
39:09
them. That changes the whole
39:11
premise. That's no longer an interaction. It's
39:13
one direction. It's not an
39:15
exchange. Again, those nuances,
39:17
we can cut up in semantics.
39:19
And then I think the semantics, like in
39:21
this case, just have a lot of value
39:24
to them.
39:26
Yeah. You got some questions. Dan's got his questions. He's
39:29
getting his phone. I do have some questions.
39:31
He promised he wasn't texting. He's not a chronic texter.
39:34
Anything else, Maggie, on the masking
39:36
piece? I really appreciate that coming from somebody
39:38
like yourself that can kind of see both sides.
39:40
Well, actually, let me
39:43
go back one second because I do have
39:45
a question on the masking piece.
39:47
Is there a level of masking that,
39:49
or how would you describe the
39:51
level of masking that's done
39:54
kind of in just general society? So,
39:56
I don't know, if I'm on an airplane,
39:59
it may be inappropriate. I could even, I don't
40:01
know if get arrested is to get kicked
40:03
off of the plane. If I go up and like yell
40:05
and I don't know, strip naked or
40:07
something like that, which may or may not be something that
40:09
I want to do at that time, but there's
40:11
certain like behavioral repertoires that are appropriate
40:14
to certain areas.
40:16
So maybe that's a level of masking
40:18
that we all do at some point in time
40:21
versus forcing somebody
40:23
to be who they don't want to be for
40:25
the satisfaction of myself.
40:28
Can you talk a little bit
40:30
about that? Because sometimes
40:32
we have to, or we choose to mask, right?
40:35
Everybody?
40:36
Yeah, I think, again, it all goes back to that
40:38
harm reduction space, right? There are spaces
40:40
in which we have to mask in order to ensure
40:42
the safety, well-being of ourselves and others,
40:45
but making sure that we have safe spaces in
40:47
which we can fully unmask.
40:49
And I think that's what it is. The answer
40:51
is not never masking, but the answer
40:53
is having the choice to mask
40:55
when it's needed in order for
40:57
safety. And I think that...
41:00
it's not as black and white as
41:02
a lot of people would want it to be. Maybe
41:07
the child who's wanting to
41:09
scream, what can we
41:11
give them so they can not get to
41:13
that point? Because maybe that is a dysregulated
41:15
child. Maybe if we had given them
41:17
more sensory regulation
41:19
before getting on the airplane, they wouldn't
41:21
have been escalated to
41:23
that point. And so I think it's about
41:25
really figuring out what what
41:28
degree of unmasking
41:30
is this child able to do in order to
41:32
still stay safe in this environment?
41:36
So what you're saying is, if we were to take a continuum,
41:38
there's a percentage of time that
41:40
we individuals with autism,
41:43
neurotypical individuals,
41:45
spend masking and a percentage of time we spend
41:47
unmasking. Historically,
41:49
society has expected individuals
41:51
on the autism spectrum to spend a
41:53
larger portion of time masking than
41:55
unmasking, and that was very harmful.
41:57
So we're not saying that we're completely going
41:59
100% unmasking, but
42:01
we're saying we need to tip the scales a little bit more
42:04
towards that end because we've been far closer
42:06
to 100% masking, which has caused harm.
42:08
Is that an accurate statement?
42:11
Yeah, I think so. And I think it's also
42:13
getting curious about if a child
42:15
is unmasked in a place where you might not
42:18
typically see someone unmasked,
42:20
are we wanting them to mask
42:22
for their safety or for our own benefit?
42:24
And I think that's where the
42:27
line can get blurred of I would
42:29
never want to send the message that someone
42:31
should mask in order to appease
42:33
someone else. But it's a different
42:35
story when it's for their safety or well-being
42:38
in certain situations or settings.
42:41
And then how would you, absolutely, that
42:43
makes so much sense. The president
42:45
of the company I worked
42:47
for, Proact, really, I
42:49
use this like every podcast, but she has
42:51
a statement, whose needs are we meeting
42:53
when? And so often we're focused on our
42:55
needs, not our clients' needs of just
42:57
having that person
42:59
not scream in my ear or
43:02
it bothers me when they hit themselves. So
43:04
I want to get the feeling of them being
43:06
okay by them stop hitting themselves, focused
43:08
on our needs, not why are they hitting themselves
43:10
or why are they screaming. Use
43:12
the term unmasking. So
43:15
How could you make that visual
43:18
for, say, a parent or something like that?
43:20
Because you've talked about maybe somebody
43:22
being rambunctious and running around
43:24
the corner of a room or something like that being unmasking.
43:27
Would you define maybe somebody hitting
43:29
themselves in the head? How
43:31
do you define unmasking?
43:35
So for me, I think it's about listening
43:37
to what signals your body is
43:39
sending you. and allowing yourself
43:41
to engage in those.
43:43
So like one of the first times after
43:45
my diagnosis that I could, like
43:48
tangibly feel myself unmasking was
43:50
after an Eagles game. Go birds.
43:53
Super Bowl champion Eagles. We
43:55
were
43:57
waiting for SEPTA
43:59
to come to take us home on the train. And it was
44:01
super loud. It was bright. It smelled
44:03
terrible. And I was really uncomfortable. And
44:05
so I noticed that I was uncomfortable
44:08
and that I started to like move
44:10
my body in a way that was regulating
44:12
for myself. And then I was able to
44:14
stay in that environment while I
44:16
was moving in order to stay regulated. So
44:18
that was one of the first times I was
44:20
like, wow, i didn't come
44:22
home and just completely fall apart
44:24
because like for parents a lot of the
44:26
families we work with their kids come home and they're
44:28
falling apart and that's happening because they're
44:30
spending such a high percentage of their day
44:32
masking right that they come home and they're just
44:34
completely dysregulated and have
44:36
to then figure out a way to re-regulate themselves
44:39
so in that situation had
44:41
i not moved my body in a way that was regulating
44:43
while waiting for septa i probably
44:46
would have come home and been a complete bear
44:48
to my husband because i was dysregulated
44:50
so does Does that answer your question?
44:52
It does. I've seen a picture of what that's like.
44:54
It does. I just want to be clear
44:56
to what Mike was saying. And I
44:59
want to understand, in no way am I challenging what you're saying,
45:01
that let's
45:03
say we're sitting down to
45:05
do homework or something like that, sitting
45:08
down to do whatever task or about
45:10
to do a task, and the individual
45:12
maybe runs away or does something
45:15
like that. Would you call that unmasking?
45:18
Because they're expressing themselves? Go ahead.
45:21
Well, my first question is why would they
45:23
need to sit down to do the task?
45:25
Because I think that's the first piece that
45:27
might encourage them to mask.
45:30
Like, well, they have to be engaged
45:32
by sitting in a chair to do their
45:34
work, where I rarely work at
45:36
a desk. I'm typically laid on the floor
45:38
vertical is how I work best, or
45:40
standing. So I think that's the
45:42
first piece we're thinking of, because that child
45:45
in that moment, if they
45:47
run away, to me, that's maybe not as much
45:49
unmasking as them not assenting
45:51
to sitting down. They didn't assent to sitting
45:54
here. How can we restructure
45:56
this task in a way that they can
45:58
still be regulated and access
46:00
whatever the learning opportunity is?
46:03
Man, what a cool dichotomy, right?
46:05
So the moment that child
46:07
stands up, somebody's going
46:09
to say that child is no longer able to
46:11
learn because of my traditional view here.
46:13
And you're saying that child's simply
46:15
not assenting to sitting. That's,
46:17
I mean, that is just a such a contrast
46:20
to wrap your mind around but it's so important
46:22
because i mean you're absolutely
46:24
right that it's a it's a preconceived
46:27
notion that learning looks like this
46:29
and if the moment that you don't fit
46:31
into that now you're non-compliant
46:33
and now i run the risk of
46:36
of uh of you know saying that you're
46:38
fooling around as opposed to you're expressing
46:40
a need and you're getting it and then as soon
46:42
as i can see that you're ready maybe i'm able
46:44
to offer you this SD
46:46
and you respond and you do the
46:49
item on the worksheet and now we reinforce
46:51
you likely by allowing you to continue to
46:53
unmask or fool around, however we
46:55
want to put that. But again, it's such a slippery
46:57
slope. It's a very basic premise.
46:59
It's very parsimonious. And then based
47:02
on traditional notions
47:04
of discipline, it breaks all
47:06
the rules. It really just breaks
47:08
all the rules. Anyway.
47:10
Yeah.
47:11
No, thank you for answering that. You really put things
47:13
in an interesting perspective and the way you word
47:15
them is something I probably
47:17
wouldn't have thought of. So we learned so much speaking
47:19
with you. So thank you for
47:21
answering that. So
47:23
we talked about the social
47:26
versus the medical model of disability. Talked about
47:28
it a little bit with Michelle. A parent
47:30
actually brought that up. We did
47:33
a... We do a presentation for
47:35
parents from parents with individuals
47:37
on the spectrum on kind of
47:39
just what it's like to go through getting the diagnosis,
47:41
what they would recommend kind of being on the other end.
47:43
And one of them brought up the difference between
47:45
the social versus the medical model of disability.
47:48
Are you familiar with that,
47:50
Maggie?
47:51
Yeah, yeah, I am. Like the
47:53
distinct semantics right now of it are
47:56
escaping me. But yeah, I'm familiar with the concept.
47:58
So
47:58
yeah, basically a lot of times
48:01
because we're funded by medical insurances,
48:03
at least initially, it seems like our insurances
48:05
are under the medical model. And the medical model
48:08
oftentimes operates on, you have a diagnosis,
48:10
we're going to give you some treatment
48:13
in the idea that we're going to
48:15
fix or alleviate this diagnosis. That's
48:17
what the traditional medical model
48:19
goes with. Now, obviously in ABA, we're
48:21
not that rigid, but that's what the medical model
48:23
is. Whereas the social model
48:25
is, it's just society not necessarily
48:28
set up for these individuals.
48:30
And it's not necessarily just the individual
48:32
individuals that needs to
48:34
receive the treatment, but society itself
48:37
or that environment needs the treatment
48:39
so that they can better accommodate
48:41
for the individual. Now, obviously it's
48:43
not 100% of either one, but do
48:45
you have any thoughts on kind of that
48:48
balance between the social versus the medical
48:50
model of disability?
48:52
Yeah, I mean, I think we have to play the game,
48:54
right? That's how I always think of it, because
48:57
we do work with insurance
48:59
funders. And I think that
49:01
as a company, we just get creative in the way
49:03
that we're expressing what this
49:05
child's challenges and strengths are. And
49:07
so even like in our session notes, you know, they
49:10
want you to talk about those core
49:12
Deficits,
49:17
right.
49:32
In this situation, semantics
49:34
does matter.
49:35
And
49:36
the way that we're talking about these kids, the way
49:38
that we're writing goals to support
49:40
them. But I think the way you meld
49:42
the two is
49:44
by how you're writing the
49:46
goals so if it's that
49:48
the goal is for the child to
49:50
participate in circle time instead
49:53
of just writing the child will participate in
49:55
circle time for five minutes because that's
49:57
like a society expectation maybe
49:59
you'll say with unlimited access to
50:01
regulation tools and while honoring
50:03
a sense withdrawal child will participate
50:06
right and so it's that slight
50:08
shift of you know how can we not only
50:10
look at the child's behavior but the environment
50:12
in order to support the child's behavior
50:15
because that they're regulated at circle
50:17
time, that's much different than just
50:20
participating in circle time, right?
50:23
This concludes part one of
50:25
our interview with Maggie Haraberta.
50:27
Please do return for part
50:29
two and
50:31
always analyze responsibly.
50:34
ABA on Tap is recorded
50:36
live and unfiltered.
50:38
We're done for today. You don't have to go
50:40
home, but you can't stay here.
50:43
See you next time.
1:42:33
ABA on Tap
1:42:35
is recorded live and unfiltered.
1:42:37
We're done for today. You
1:42:39
don't have to go home, but you can't stay
1:42:41
here. See you next time.
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